I was reading an article about life the other day, and one of the things that struck me is that one person who was dying wanted a “normal day.” I agree. There were so many types of days while Paul was struggling with his disease. Days on a diet, days at the doctor, days where he went to work and days where he was asleep as quick as possible. There were other days where we went to Disney World, and visited my Grandparents in Traverse City, and went on drives in the car. When I think back to hanging with my brother, I don’t want more vacation days or graduation days or party days. I want just a normal day. There can be so many expectations with the special days, when it is just a run of the mill day you just are happy to be yourself.
My favorite day was when we had a food fight with my brother. For years my brother had talked about food fights. He had seen several food fights on television and he wanted to do it in real life. We decided to do it. We got the food and invited several people to come over and participate. We combined the food fight with a water fight. Several people showed up and they were really excited. We go outside, his friend grabbed the mash potato container and right before she threw it at him, he said, “I don’t want to play,” and went inside.
Paul was definitely his own person. I loved that. There is something about the reality of a dream that is disheartening.